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  • Tony Pillage WINS Coventry Telegraph 'Sporting Hero' Award.

OUR BLOG

THE BOY WHOSE SKIN DROPPED OFF

By Anthony Pillage | In Psychology, Self Help | on June 2, 2013

I have woken up today full of the wonders of the human spirit. I remember watching this video of Johnny Kennedy and literally spending an hour in tears..not necessarily of sadness either. This mans fight and indominable spirit has acted as a beacon for me me since watching it about 5 years ago. So when life is getting you down please re watch this and realise that just maybe things are not really as bad as they seem.

A couple of years ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) – which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

http://www.youtube.com/watch?v=AD3EXUEVnwk

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